Wednesday, August 19, 2009

An update note from Mommy

According to the State, I am officially considered permanently disabled. I was diagnosed about two weeks ago with both CPS (Central Pain Syndrome) and Fibromyalgia. I had injured my lower back the summer of 1994. Since then, I had only two or three times when my back really hurt. I did have sciatica and very loose joints when I was pregnant with my two girls, but this virtually vanished when they were born.

This past October, I went to see a chiropractor who has greatly benefited a good friend and her family. It wasn't for any special reason, just to see what would come of it.

Well, what came of it was CPS. After an adjustment at the base of my spine (at just my second appt!), I was in a great deal of pain. He made another adjustment, which brought no relief. Since that time, I have lived with the shooting pains, light touch sensitivity, etc.

It has developed into a real pain in the a**, literally. I can't walk for very far or long. Sitting is extremely difficult and I never know if I will be able to sit down anywhere when we go out.

I was eventually sent to a pain specialist, where I was given a misdiagnosis of a herniated disk between my 3rd and 4th lumbars in my spine back in March.

So, now I'm not only dealing with the pain of both conditions, I'm also trying to accept that this pain will last the rest of my life. I'm also very frustrated, as the only info I have about CPS I have found online. It is considered to be a "Rare Disease". Mom has fibro, so I understand a bit more about that.

Today, I was granted a permanent handicap placard by the State BMV. I'm glad to get any help I can in dealing with this.

I can smile, and laugh, so I know I will be okay. I know that I am a lot more than just my pain.

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